The Only Way Out is Through the Door: Strange Days in the Land of TBI

Calico Door

Calico Door

location: Bakersfield Hilton
mood:     cranky   date: November 26, 2006

We made it to Bakersfield with everyone intact. Terry didn’t escape and I didn’t kill him.

We drove through the night and the guys, bless their firefighter hearts, pulled the monster motor home into a gas station in Bakersfield and filled it up. About $150.00 of gas cash from my pocket later, they dropped us at the car rental place at the Bakersfield airport and turned for home. I love them for being so generous, you can’t pay back that kind of caring. I got the car rented, loaded Terry and our luggage into it and headed for the hotel. I have schools in Bakersfield so I at least know my way around. Its nice to see the sunshine again and I’d like to think it makes Terry happy too.

Terry and friends outside the motorhome

Terry and friends outside the motorhome

We had lunch at a Mexican restaurant which was not memorable except that Terry dribbled salsa down his front and in spite of my sotto voce command of, “Don’t do that!” He ate the hot salsa with a spoon like soup. Note to self: find the tums and tell him they are dessert.

Terry, the sad prisoner

Terry, the sad prisoner

I am so glad there is only one more day before Terry goes to the center tomorrow. I would like to stick him in a wicker basket  on their porch with a note on his chest and drive off into the sunset, but instead I’ll be there, the dutiful wonderful wife at his side supporting him. And yes, I still am that but I’m tired, frustrated, sick of him and want this whole nightmare to be over. I feel so sad for him sometimes, he really is pitiful now in a lot of ways. This strong man is wandering around the hotel room hunched over without a shirt on, he looks like a little old 80 year with a saggy body because he’s lost so much weight.

In our room he is very agitated because he is sure we need to burn our clothes as part of the hotel fire protection. Thank God there are no matches. He pulls a case off a pillow because he needs a fusible link and we are off to the races. He demands the keys and tells me he is going to sleep in the car because I am such a bitch. Just what I need, my naked husband with the hotel coverlet wrapped around him running through the lobby. Perfect.

At this point, I finally call Shayne on his cell phone and make him talk to his father. Shayne can usually get him in off the ledge because Shayne is never with him for more than an hour and they are still at the “I love you, Dad, you are my hero phase.” Gag. I’m at the shut the fuck up and sit down phase. Poor Terry. Most of the time I cope just fine and things are as okay as they can be in this insane anteroom to hell.

He goes to bed starting at about 6:00 and comes out every five minutes to see if the t.v. is turned up too high or I’m still up or whatever. Of course I’m up. I’m still working until after midnight most nights at home. Terry throws his clothes on the floor and changes four or five times a day. I’m doing excess laundry, dishes, whatever it takes to keep the world running. No one is helping anymore. After the drama the grind sets in and friends fade. When I get my nerve up I call and ask for an hour here and there to go shopping for groceries.  We  had a ‘housekeeper’ for two days. What a mistake that was! She was supposed to watch Terry but was totally unable to relate to him in any way and mostly she smoked outside and sulked inside.  I called the agency and said to not send her back. It’s easier to do it myself.

I’m so glad we finally have at least a ray of hope. A window of chance to get him some help that I cannot provide. What are the parameters? If I baby him and put up with him will he just stall and stay in this terrible place? If I push him, when is it too much for both of us? I just don’t know, and I don’t think anyone does who is an unexpected caregiver.

After Terry talks to Shayne, Tor calls. He’s 14 and this is scary. He doesn’t know where Shayne and Heather are and it is getting dark.  He’s there and I’m here, helpless and mad.  Poor kid, one more lousy Terry thing for him to cope with. They were supposed to be at the house hours ago to stay there for the week I would be gone, so far no sign of them. I finally run them down and they say they are doing laundry.

Another hour passes, another call from Tor, home alone in the dark in in Olympia.

I finally get a call on my cell phone while sitting on the floor in front of the hotel room door to keep Terry from escaping naked to run through the corridors. “We can’t come, Heather has allergies to your cat.” I don’t even get mad, I just hang up. I will have time to be angry and never forgive them later. I  simply called my friend Faye, my go-to girl. She is in her pajamas but she jumps right in her car and comes over to spend the night, now that’s a friend. My son Corey who works two hours away from Olympia,  has promised to stay at my house with two dogs, two cats and one kid for the rest of the week. His poor wife and kids will be sacrificing him to the gods of TBI for the duration.

Calico Cowboys and Indians, California tourist town fun

Calico Cowboys and Indians, California tourist town fun

I am in my own one ring circus with Terry again. It’s 6:01 on Sunday morning. Terry decided he had to get up at 5:05–started to get up at 4:14. I want to kill him. He slept like a log from about 8:00 on due to the Trazodone I stuffed into him. It makes him giggle weirdly and he’s off balance but he sleeps. I’m glad Robin posts the ‘tidier’ emails about Terry because if only my posts were read this whole thing would look demented instead of just the demented moments that I seem to need to catch.

Its the day after after our amusement park ride that lasted 24 hours in the RV. I hate sitting sideways and I hate not being able to see out. It was like being in a big, rattling, banging, noisy, box with steamed up windows. Terry was miserable and sure we were kidnapping him and taking him somewhere evil. Keep in mind, the motorhome was generously loaned to us and that the drivers were two fire fighters who are his old friends. He just knew the cops were looking for us. He wouldn’t lay down in the bedroom because it was an unsecured area. So we had to bounce along most of the night in the living room sitting up. It was like being in a silverware drawer full of silverware in a non stop earthquake. Bang bang rattle rattle thump thump and Terry sulking.

We stopped in Oregon for dinner near Roseberg and he was surprised to see his parents in the parking lot. He had only had it explained every day for weeks. He was obviously having a very foggy day….but I’m glad his mom got to see him.

Going for a ride, stuck in traffic on a sunny day makes me happy.

Going for a ride, stuck in traffic on a sunny day makes me happy.

He seems a little more sane today now that he is awake and dressed. We are going to try to drive up to Calico, a touristy ghost town that he loves. I cannot sit in a hotel room with him for 24 hours or one of us will not survive. He loves adventures so I hope this will be fun and wear him out before bed time. Tomorrow is the big day he checks into the Centre for Neuroskills for God knows how long.

I will be driving on into LA and stay from Wednesday to Friday  to meet with the boss who hired me months ago and has put up with my crazy non-working schedule and paid me anyway. I am looking forward to getting at least part of my life back. I am dreading saying good-bye to Terry, it will be a relief and a rending. I  think I will cope by going out to dinner and getting  fairly drunk one night. It’s a start.

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