November 2006, Bakersfield, California
We had a really nice day Sunday, it was crisp and clear and we drove out to Calico, which is a state-park-recreated-ghost-town-low-key-theme park kind of thing. It was fun and this weekend was their Christmas celebration. Santa was wandering around in a black cowboy hat–why not a white one? Doesn’t he watch old movies? The black hats are the BAD guys and the WHITE hats are the good guys. There was lots of live music all over town and we just slowly strolled around and poked our noses in here and there and had a good time. I did notice the quality of stuff for sale was appallingly low, I’m such a gift shop snob….
Since Terry woke me yesterday at 4:30 a.m. and we were on the road by 7:00 it was no surprise to be headed home by lunchtime. Unfortunately we hit holiday traffic. There is, so help me, ONE traffic light outside of Barstow at a 4-way intersection that leads to San Bernardino, Bakersfield, Barstow and the Mojave desert. The traffic was backed up 10 miles at a minimum. It took three hours to go 39 miles. Stop, roll forward as long as the green light was on, stop, etc.
Needless to say it was somewhat stressful on Terry and he didn’t sleep well last night. We had our usual sundowners episode in which he intended to go sleep in the car so he wouldn’t have to put up with “a bossy woman” (me). At the time he was dressed in a long sleeved flannel shirt his underwear and tennis shoes and clutching two blankets. I did manage to convince him to stay in and he managed to finally sleep but today he is having a Captain Froot Loop day.
We got to the Centre for Neuro Skills today around ten in the morning. Map Quest got me right there and I drove right past it–twice. Unprepossessing building in an unprepossessing area, the centre has strip malls and a big mall as its nearest neighbors. Once you get inside the door of the place the ‘vibe’ changes radically.
As we arrived, a boatload, okay a van load, of clients were delivered from their apartments to the Centre to get their therapy day started. I was much struck by the positive energy. Every patient who comes in gets a cheery greeting by name from the receptionist, the therapists and the workers.
We got a tour of the facility and within an hour Terry was pulled away for his first therapy appointment. He was already on the charts/schedules before we got there. Apparently the first week or so he will be intensely scrutinized and viewed and examined and conclusions will be made as to what his needs are. They will be presenting a monster-sized report to the insurance company with their findings so time is of the essence. I feel so grateful for Terry’s physical health. The people who got off that bus were tragic in so many ways, many in walkers or wheelchairs or with other really obvious disabilities and I cannot see them making it all the way back in some cases.
I was so tired that I lost the car keys this morning and then I found them right where they belonged. duh… and then I thought I lost my folio with all of Terry’s stuff in it—like his birth certificate–and the power of attorney–it turned up thank heavens, but it scared me seriously. I know I need rest and I hope I can find it now that at least for a while my problems are on someone else’s shoulders.
It seems very odd to be here in this room tonight without Terry. I am so used to having him right next to me 24/7 and jumping at every sound that I find this very strange. I think I’ll have to decompress for awhile. After we finished at the center today we went to the apartments the Centre owns to check Terry in and meet his suite mates. They are in a really nice area of Bakersfield, gated and about ten miles away. The Centre believes that to reintegrate to the real world clients/patients need to closely mimic the way the world works. This means buying their own food each week at the grocery store, cooking their meals, going on outings, doing their laundry, and as much as possible living like a normal person–all completely and carefully supervised until they are able to graduate to the next level after proving that they have mastered specific tasks. The apartments are spacious and Terry has his own room and two roommates in this three bedroom unit.
I did his grocery shopping for him to get him started. They give the clients a set allowance for money and for outings each week. Anything like clothing and haircuts are out of the funds I left for him. He has help 24 hours a day that each focus on different skills to help him relearn all the things he’s missing and they all seemed very cheerful and smart.
I learned a lot that I want to share but tonight I’m just too darned tired to put all the philosophy and such like out here and gnaw on it. I think he will get much better, I’m comfortable and pleased with the place he is in and so grateful we found them. I think he has far more damage than we first thought and that he won’t ever make it all the way back–but he’ll get really a lot better with time. So, I’m ending this day on a hopeful note.
Tomorrow I go back to see him for the morning and in the afternoon I say good bye and head to L.A. He kissed me good night tonight and settled in to his bed and seemed to be doing well. We’ll just have to wait and see at this point. He doesn’t understand why he is in prison but the windows are barred and the whole place is gated. I am going to sleep now, for the first time in months without listening with one ear for him to get up and try to leave. Good night moon.